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Participants

We know diseases don’t discriminate—and neither should the treatments that fight them. Yet, many clinical trials lack participants from diverse populations, leading to gaps in medical knowledge. By joining a trial, you’re not just helping yourself—you’re helping future generations.

Patient Journey

Participating in clinical trials offers an opportunity to contribute to groundbreaking research and explore new treatments. We know the idea of joining a trial can feel overwhelming—whether you are navigating a diagnosis or volunteering to help others. That’s why we’re providing guidance to help you get started and to provide you with the confidence and resources you need throughout this journey.

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Whether you're a patient with a diagnosis or a healthy volunteer, clinical trials need you. Click below to see what the clinical trial experience has to offer you. 

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Diagnosed Patient: Finding Hope and Exploring New Options

 

Healthy Volunteer: Contributing to Future Health Breakthroughs

 

Your participation matters, and we’re here to support you every step of the way.

FAQs

  • What is a clinical trial?

  • Who conducts clinical trials?

  • How is my safety ensured during a clinical trial?

  • How is my health monitored during the trial?

  • Will I be a "guinea pig"?

  • How do I know if a clinical trial is right for me?

  • Are clinical trials only for people with serious illnesses?

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Find the answers to these and other frequently asked questions on our Demystifying Clinical Trials Page

Resources

FDA's Clinical Trial Diversity Resources

  • The FDA offers guides and infographics on the importance of diverse participation in clinical trials. They also include practical tips on becoming a clinical trial advocate

 

NIH Clinical Research Trials and You

  • This NIH platform provides detailed information about the clinical trial process, participant rights, and how to find trials. There are also sections tailored for specific groups, such as children and older adults, to address their unique needs.
     

NIMHD's Diversity & Inclusion Resources

  • The National Institute on Minority Health and Health Disparities (NIMHD) offers materials on overcoming health disparities through inclusive research. These resources emphasize the value of lived experiences in shaping medical outcomes for underrepresented populations.


Participant Stories and Community Voices

  • The National Heart, Lung, and Blood Institute (NHLBI) shares real stories from participants, highlighting their experiences in trials, especially among individuals with conditions like sickle cell disease. This helps potential participants understand the personal impact and benefits of taking part.


NIH Educational Tools and Glossaries

  • Offer participants access to glossaries, videos, and FAQs that explain medical and research terminology in simple language. These tools can demystify clinical trials and make participants feel more comfortable and informed about their involvement.
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